Ray of Hope

Reacting To Differences

Because October is National Dwarfism Awareness Month… Have you ever caught yourself staring at someone else? I know what it is like to see someone in church or somewhere else and take notice of a feature that isn’t characteristic of the average person. I tend to assume they have special needs or were involved in [...]

I think I’m my kids’ cousin

I have a new love hobby. I’m finding my people. I’m finding myself. You remember what we discovered about Carsten’s condition when we went to the Little People of America Conference, right? Well if you don’t then go back and read it. I’ll wait. Just hurry because I am a bit impatient lately.   Carsten’s [...]

Carsten’s Diagnosis: Cartilage-Hair Hypoplasia for sure!

When we went to Nashville for the conference one of the things we were  hoping to do was get a definitive diagnosis. Carsten’s doctors here have been slow to confirm Cartilage-Hair Hypoplasia because he does not have one of the more common issues associated with it: the immune deficiency.  The awesome thing, okay just one [...]

More from the LPA Conference in Nashville

Yesterday we had a wee sick baby. He cried all day and so finally by two o’clock I called Ryan at work to let him know I was bringing Matthias to the doctor. It turns out he only had a stomach bug. *phew* Anyways, here is how the rest of our Little People of America [...]

2010 Little People of America Conference in Nashville – or BUST!

Last year Carsten was blessed to get a full paid scholarship to the LPA conference (Thank you, thank you, thank you!). He has wanted this for so long. We were all so excited to finally be able to go. We registered as soon as we were able and I do believe Carsten packed a couple [...]

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