Ray of Hope

Carsten’s Diagnosis: Cartilage-Hair Hypoplasia for sure!

When we went to Nashville for the conference one of the things we were  hoping to do was get a definitive diagnosis. Carsten’s doctors here have been slow to confirm Cartilage-Hair Hypoplasia because he does not have one of the more common issues associated with it: the immune deficiency.  The awesome thing, okay just one [...]

More from the LPA Conference in Nashville

Yesterday we had a wee sick baby. He cried all day and so finally by two o’clock I called Ryan at work to let him know I was bringing Matthias to the doctor. It turns out he only had a stomach bug. *phew* Anyways, here is how the rest of our Little People of America [...]

2010 Little People of America Conference in Nashville – or BUST!

Last year Carsten was blessed to get a full paid scholarship to the LPA conference (Thank you, thank you, thank you!). He has wanted this for so long. We were all so excited to finally be able to go. We registered as soon as we were able and I do believe Carsten packed a couple [...]

I have a secret…

That’s right. I played a trick on some of you. Not a mean trick but a trick nonetheless. We have been gone since last week. I scheduled all of my posts ahead of time so that crazy local internet stalkers who might rob our house or try to kidnap us no one would know we [...]

Celebration of Life

I was pregnant for my former husband before we were married. We set a date for the wedding, said our “I do”s and two weeks after we returned from our weekend getaway I went for a check up with my obstetrician. I was then told that after reviewing my previous ultrasounds they had discovered that [...]

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