Ray of Hope

Carsten’s Diagnosis: Cartilage-Hair Hypoplasia for sure!

When we went to Nashville for the conference one of the things we were  hoping to do was get a definitive diagnosis. Carsten’s doctors here have been slow to confirm Cartilage-Hair Hypoplasia because he does not have one of the more common issues associated with it: the immune deficiency.  The awesome thing, okay just one [...]

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